CNPCC Terms of Reference

Mission

Our purpose is to improve the quality of living and dying for infants, children and youth with life-threatening conditions and their families. We provide leadership and a common voice for pediatric hospice palliative and end-of-life care across Canada, driving, empowering and supporting high quality care throughout the trajectory of the illness and through bereavement.

Purpose

  • To provide leadership in pediatric hospice palliative care and to advocate for greater and more equal access for children of all ages, along with their families, to high quality palliative care programs, whatever their geographic location.
    • Advocate to increase  awareness and resources
      • Advocate for the integration of  hospice palliative and end-of-life care principles and practices into all  health settings
        • Promote a common/cohesive understanding of pediatric hospice palliative care, emphasizing the importance of early access to palliative care, (combined with therapy for cure or control of condition), among professionals, community organizations and family caregivers.
        • Advocate for providers in all settings to have access to specialized pediatric palliative care teams
      • Collaborate on national and international activities and initiatives in the field of hospice palliative care and to seek opportunities for partnerships,
    • Support initiatives to improve the quality of palliative care provided to children with life threatening conditions
      • Advocate for, and support initiatives to increase palliative care education at undergraduate and post graduate levels for all relevant professions, as well as education and training for practicing clinicians in all health care settings including the community.
      • Promote evidence-informed  policy and practices
        • Identify and refine best practices and standards for pediatric hospice palliative, end of- life care and bereavement support in all settings.
        • Seek opportunities for research collaborations, and disseminate   findings to the field.
  • To function as a Community of Practice to share knowledge and experience and provide support to improve the overall quality of the delivery of hospice palliative care for children and the well-being of network members.

Governance:

  • CNPCC is a professional network within the Canadian Hospice Palliative Care Association (CHPCA).

CNPCC has an Executive Committee to oversee day-to-day operations, manage budget, propose, plan and implement policy and initiatives, and communicate on behalf of the CNPCC. Terms of Reference for the Executive Committee are available on the CNPCC website.

Membership: 

Clinicians, researchers, educators and administrators with a role primarily related to pediatric hospice and palliative care (including grief support) can be full members of the CNPCC.

  • Full members have voting rights to vote at General Meetings as will be called, at least bi-annually, and can vote on other CNPCC-wide initiatives from time-to-time.
  • Full members can serve on committees as formed by the Executive Committee.
  • Full members can access funds available for projects, bursaries, travel, etc., as made available through the CNPCC as appropriate and determined by the Executive Committee
  • Full members will receive discounts, as appropriate and determined by the Executive Committee for CNPCC activities that have associated costs.
  • Full members can designate themselves as “Member, CNPCC”.
  • Full members can access all CNPCC materials
  • Application for full membership will be made by applying to the CNPCC through the Executive Committee.  The Executive committee will establish processes for reviewing applications and approving applicants.
  • Full members of the CNPCC must be members in good standing of either CHPCA or their provincial hospice palliative care association.

Associate Members: 

The CNPCC welcomes volunteers, health care professionals, family members, and members not resident in Canada with an interest in PHPC.

  • Associate members will receive communications from the CNPCC via avenues such as mailing lists, and will receive updates, newsletters, etc.
  • Associate members can attend the General Meeting of the CNPCC.
  • Associate Members may be eligible for discounts, as appropriate and determined by the Executive Committee for CNPCC activities that have associated costs.
  • Application for associate membership will be made by applying to the CNPCC through the Executive Committee.  The Executive committee will establish processes for reviewing applications and approving applicants.
  • Associate members do not have voting rights.
  • Associate members do not serve on committees unless the Terms of Reference for a committee specifies their participation
  • Associate members cannot access the Members website or other Members-only materials or documents.
  • Associate members do not have to be members of CHPCA or their provincial hospice palliative care association.

Approved February 25, 2015